Insomnia. Can't get no sleep.

[Buckster]

2 minutes ago, Six30 said:

phantom pain ? where do you feel the pain, hard to understand you can get pain in something thats not there

Similar to when you get headaches.

[boboneleg]

1 hour ago, busabeast said:

Not good mate, does the phantom pain affect you during the day aswell?

Yes, it can come at any time.

[Six30]

31 minutes ago, Buckster said:

Similar to when you get headaches.

[boboneleg]

29 minutes ago, Six30 said:

phantom pain ? where do you feel the pain, hard to understand you can get pain in something thats not there

That's the real conundrum @Six30  It's bloody annoying when you're getting this pain in a part of your body which just isn't there.  There are loads of studies into the phenomenon but nobody really understands it.

If you go to your doctor they will usually prescribe you something that is used for peeps that have epilepsy .  I have tried all sorts over the years including Gabapentin, Tramadol, Citalopram and others but all these drugs have side affects . About 15 years ago I even tried Hypnosis and even acupuncture but none of it has worked.

 

[Six30]

Just now, boboneleg said:

That's the real conundrum @Six30  It's bloody annoying when you're getting this pain in a part of your body which just isn't there.  There are loads of studies into the phenomenon but nobody really understands it.

If you go to your doctor they will usually prescribe you something that is used for peeps that have epilepsy .  I have tried all sorts over the years including Gabapentin, Tramadol, Citalopram and others but all these drugs have side affects . About 15 years ago I even tried Hypnosis and even acupuncture but none of it has worked.

 

is it a regular thing that you just have to put up with, how long does it last each time ? must be frustrating to say the least.

[XTreme]

4 minutes ago, boboneleg said:

That's the real conundrum @Six30  It's bloody annoying when you're getting this pain in a part of your body which just isn't there.  There are loads of studies into the phenomenon but nobody really understands it.

If you go to your doctor they will usually prescribe you something that is used for peeps that have epilepsy .  I have tried all sorts over the years including Gabapentin, Tramadol, Citalopram and others but all these drugs have side affects . About 15 years ago I even tried Hypnosis and even acupuncture but none of it has worked.

 

I thought the last op was about putting a stop to that?

[boboneleg]

1 minute ago, Six30 said:

is it a regular thing that you just have to put up with, how long does it last each time ? must be frustrating to say the least.

I get 'feelings' in my three little toes nearly all the time .  I get pains in my heel from time to time but the worst are the big bangers (that I'm getting now) in the arch of my foot.  At the moment these have lasted four days so I'm really hoping they'll stop soon.  I can still feel my big toe now , 22 years later and that can be a bugger as well.

[boboneleg]

3 minutes ago, XTreme said:

I thought the last op was about putting a stop to that?

Yes, it was 50% about that Pete    The last op was a success in that it has enabled to walk a fair distance without the terrible cramping I used to get but it has done nothing to resolve the phantom pains even though they took away the big nerve behind my knee.

[busabeast]

32 minutes ago, boboneleg said:

I get 'feelings' in my three little toes nearly all the time .  I get pains in my heel from time to time but the worst are the big bangers (that I'm getting now) in the arch of my foot.  At the moment these have lasted four days so I'm really hoping they'll stop soon.  I can still feel my big toe now , 22 years later and that can be a bugger as well.

That sounds bloody horrible bob, I'm glad I didn't lose my last arm like the Dr's were saying was likely 20 years ago when I had my biggie.

My elbow is in pain most of the time but abit of massage on the joint and its ok, not sure if I can get an elbow replacement or if that will just make things worse

[Six30]

43 minutes ago, boboneleg said:

I get 'feelings' in my three little toes nearly all the time .  I get pains in my heel from time to time but the worst are the big bangers (that I'm getting now) in the arch of my foot.  At the moment these have lasted four days so I'm really hoping they'll stop soon.  I can still feel my big toe now , 22 years later and that can be a bugger as well.

wonder if @XTreme will get that.... now he's had his cock off.

[Six30]

10 minutes ago, busabeast said:

That sounds bloody horrible bob, I'm glad I didn't lose my last arm like the Dr's were saying was likely 20 years ago when I had my biggie.

My elbow is in pain most of the time but abit of massage on the joint and its ok, not sure if I can get an elbow replacement or if that will just make things worse

[busabeast]

1 hour ago, Six30 said:

wonder if @XTreme will get that.... now he's had his cock off.

Nah he's always had an axe wound

[Pedro]

5 hours ago, boboneleg said:

I get 'feelings' in my three little toes nearly all the time .  I get pains in my heel from time to time but the worst are the big bangers (that I'm getting now) in the arch of my foot.  At the moment these have lasted four days so I'm really hoping they'll stop soon.  I can still feel my big toe now , 22 years later and that can be a bugger as well.

Not a joke, but have you tried closing your eyes and pretend to massage your non existing foot?

[boboneleg]

2 minutes ago, Pedro said:

Not a joke, but have you tried closing your eyes and pretend to massage your non existing foot?

Yep, that was one of the exercises in the hypnosis therapy.  Last night I was massaging my actual stump  (no laughing at the back) but it didn't help.

[Sir Fallsalot]

6 hours ago, boboneleg said:

That's the real conundrum @Six30  It's bloody annoying when you're getting this pain in a part of your body which just isn't there.  There are loads of studies into the phenomenon but nobody really understands it.

If you go to your doctor they will usually prescribe you something that is used for peeps that have epilepsy .  I have tried all sorts over the years including Gabapentin, Tramadol, Citalopram and others but all these drugs have side affects . About 15 years ago I even tried Hypnosis and even acupuncture but none of it has worked.

 

I bet there's some twat with your lower left leg in a freezer and every now and again thaws it out to stick needles in it lol.

[Buckster]

6 minutes ago, Sir Fallsalot said:

I bet there's some twat with your lower left leg in a freezer and every now and again thaws it out to stick needles in it lol.

[Catteeclan]

8 hours ago, Buckster said:

Similar to when you get headaches.

I've just spat coffee out.

[busabeast]

1 hour ago, Sir Fallsalot said:

I bet there's some twat with your lower left leg in a freezer and every now and again thaws it out to stick needles in it lol.

Guess Frankengroin will start on about phantom pains in his missing appendage soon

[busabeast]

2 hours ago, boboneleg said:

Yep, that was one of the exercises in the hypnosis therapy.  Last night I was massaging my actual stump  (no laughing at the back) but it didn't help.

I'd have thought it would have diverted your attention from the pain

[XTreme]

3 minutes ago, busabeast said:

Guess Frankengroin will start on about phantom pains in his missing appendage soon

They don't remove anything with a Hernia......they push everything back in.

[busabeast]

7 minutes ago, XTreme said:

They don't remove anything with a Hernia......they push everything back in.

That's what they told you, some are sure you were in the wrong operating theater and have been given an axe wound 

[Six30]

58 minutes ago, Catteeclan said:

I've just spat coffee out.

[Six30]

3 hours ago, boboneleg said:

Yep, that was one of the exercises in the hypnosis therapy.  Last night I was massaging my actual stump  (no laughing at the back) but it didn't help.

been thinking about this , if you whack your thumb with a hammer it hurts .. or does it , is pain just a mental thing ?

[skyrider]

1 hour ago, Catteeclan said:

I've just spat coffee out.

what a waste of good nescafe

[boboneleg]

24 minutes ago, Six30 said:

been thinking about this , if you whack your thumb with a hammer it hurts .. or does it , is pain just a mental thing ?

Hmmmmmmmmmm, pain only signals itself to your body because of nerves.  Unfortunately I made a bit of a mess of my leg so nerves were all over the place .  They also try to grow again and because they have nowhere to go in my leg they grow a sort of fuzzy ball on the ends , those nerves start to touch bones, muscles etc and send pain out.  The idea behind taking away the main nerve at the back of my knee in my last surgery is it would eliminate that but for whatever reason it hasn't worked.

So the one they took away from me was the common peroneal nerve 

 

 

I'm not going to bore you anymore with this stuff but here's some info if you want to read it.

 

 

 

What phantom pain feels like

The sensation of phantom pain can vary widely. Depending on the person, it might involve:

throbbing

tingling or pins and needles

burning

sharp pain, like shooting or stabbing

cramping

sensations that feel like electric shocks

Causes of phantom pain

The exact cause of phantom pain is unclear, but it’s thought to be related to:

Nerve damage

The removal of a body part causes damage to peripheral nerves. This can irritate and overexcite the nerve endings, causing spontaneous sensations.

Central sensitization

Your peripheral nerves lead to your spinal nerves, which are connected to your spinal cord.

When a peripheral nerve is damaged during amputation or injury, central sensitization may occur. This involves increased neural activity and sensitivity in the spinal cord, resulting in phantom pain.

Brain remapping

After a body part is removed, the brain redirects sensations from that part to another area of the body. This is called remapping or reorganization.

As a result, you may feel pain in the missing body part when the nerves are stimulated in the surrounding area.

Psychological factors

In some cases, certain psychological conditions can trigger or contribute to phantom pain. These factors include:

depression

anxiety

increased stress

How is phantom pain treated?

Phantom pain may go away on its own after several months. But if the pain persists, there are several treatment options:

Medications

The following medications are used to manage phantom pain:

tricyclic antidepressants (most common)

opioids

nonsteroidal anti-inflammatory drugs

anticonvulsants

NMDA receptor antagonists

Medical treatment

Some medical therapies might also manage phantom pain:

Transcutaneous nerve stimulation. This treatment, known as TENS, stimulates nerves using electrical currents.

Central nervous system stimulation. In this treatment, electrical signals stimulate the brain or spinal cord via implanted electrodes.

Biofeedback. In biofeedback, electrodes are placed near the affected area. A specialist will teach you how to control certain functions in the area.

Other therapies for phantom pain

In addition to medication and medical treatments, the following therapies may be used:

Acupuncture. Acupuncture uses thin needles to stimulate certain areas of the body. Research on its benefits for phantom pain is still ongoing.

Massage. Massaging the affected area may help relieve muscle tension. It’s also useful for managing stress and anxiety.

Mirror therapy. This therapy may be helpful for certain types of phantom pain, including phantom limb pain. It uses a mirror box to reflect the healthy limb onto the amputated side, which tricks the brain.